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turtlensue's Journal
Posted by turtlensue in General Discussion (1/22-2007 thru 12/14/2010)
Mon Nov 09th 2009, 10:16 AM
By BOTH sides of the hcr debate! I have a rare chronic incurable blood disorder that is related to leukemia. I need to have special treatment by the Mayo clinic and to be on an "experimental" (ie non FDA approved) drug, interferon for my disease. Its expensive about $2,000 a month. My disease is a platelet disorder where my bone marrow makes too many and they don't work right. Therefore I am at risk for stroke, heart attack, bleeding AND clots. Its a silent disease in many ways.
Well, I was diagnosed young at 35 (average age of patients is 55-60). So its very likely I may run into one of those lifetime payment caps down the road.
I also am very lucky I can still work. I had a hard enough time fighting with my current insurance company to get my coverage where it is (they fought paying my first visit to Mayo roughly about $15,000 worth of payment). Fortunately I had proof of insurance from a before, although the gap of 90 days almost made it null and void so I was able to FORCE them to pay for it. Ever since then I've had periodic bouts of fighting with them about my interferon because they wanted to see if I really need it (thank you Mayo Clinic for having my back with these bastards!!).
Right wingers don't want reform and they think that those of us who are chronically ill are freeloaders who CHOSE to make ourselves sick somehow (I've read this). Fine. Whatever idiots.
But it seems those here seem to think that unless HCR is EXACTLY WHAT THEY WANT we should not accept it. Thats insensitive to people like me at the very least. THE STATUS QUO IS UNACCEPTABLE!!
Is this bill what I would like? No of course not but its a start. But the people who think that many of us WON'T benefit from losing the lifetime spending cap and the pre-exisiting condition nonsense are fools. Something has to be done.And I'm tired of being pushed to the side and told to STFU, by ANYBODY in this debate that means more to me personally than 80% of the population.
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TZ
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